I’ve been feeling much better today. It was touch and go this morning I must admit, but as always, I’ve pushed through and got out the other side. I feel like me again!
When I feel rough. When my condition flares up and I let it take control, yes it makes me feel rubbish. However it does make me appriciate my life more. The life I have pushed for, for the last few years.
Despite my little wobbles every now and then, I am now healthy and stable. And I have been for the last few years.
And I am lucky. I am lucky to be able to be in control of my life. The choices I make, although they sometimes have to be moulded about my health, are MY choices.
I am working in a job that I absolutely love and enjoy. I have friends that I talk to and meet up with occasionally (we all have very busy lives now!) and I am in a relationship with someone who constantly makes me smile and has encouraged me to be the best I can be!
I won’t go on about him and the relationship as I’d like to keep that part of my life private. However I will say that I can’t believe how much of a support he has been. I do manage my care myself. The tubes, the pump – I generally do it all by myself. And I like that I can be independent like that. Sometimes, though, it gets me down. I feel like a burden just by having these tubes connected to me. I feel unattractive because of my scars and the way my stomach looks. I feel a bit rubbish about myself occasionally. However he doesn’t see the scars. He doesn’t see the tubes. He understands why I have them. He understands that I have a health condition. But he sees past that. He sees me for who I am. But at the same time he supports me with what I have to go through. Without me even asking or saying anything, he knows when I’m in a slight bit of discomfort. He knows when I’m in pain or suffering with nausea. And he does everything in his power to try and help me.
Nothing phases him. And I really like that about him. He has made me a better, confident, happier person. 😁
Going back to my new job, wow. I absolutely love it! I have been there just over a month now and I have loved every minute. It is another admin role but this time not at a school. It’s at a family hub. An admin role, I’ve realised, is probably the perfect job for me. I’m pretty quick using computers, there is a variety of tasks for me to do and responsibilities to have (I like a challenge!). And I’m not on my feet constantly so am less likely to get tired from pushing myself and my condition. Also everyone there is amazing and super supportive!
As you can probably tell by this blog, I am loving life at the minute, despite the slight setbacks. And I am proud of myself. A few years ago I was bedbound, struggling to even sit up occasionally. Now I’m working, I’m in a relationship, I may or may not have booked my first holiday abroad in almost 8 years😉, I’m learning to drive, and I’ve got a lot of supportive friends and family around me.
Life is good😊😊
Katie's Journey 