Hope at last and … Gangnam style?

I’m a few days late but this post is going to be about what happened this month 6 years ago..

I think the easiest way is to share my statuses and explain them the best I can, so first of all, here are my facebook statuses from March 2013… (By the way – I did have the exact date for each of these but I’ve lost themπŸ˜‚ but they are in order! Haha)

So… this status above. For some reason, in my head they discovered my stomach was large in September 2012 … but by this status, maybe they discovered it later on down the line…

I remember having the tube inserted during x-ray (I was awake). They had to do it under x-ray because of the shape and size of my stomach. It wasn’t pleasant to say the least!

And yes… by this point I was very well known in the x-Ray department. As soon as I arrived I didn’t even have to say my name – they knew me so well and just was like “hey Katie!”πŸ˜‚.

It was also by this point, where I’d had enough of having time of school… I was bored and missing my friends. I was also missing normality.

And this is where Gangnam style comes in… ah. This story still makes me chuckleπŸ˜‚.

So… yeah. Also this status also mentions the time when my surgeon and his team ‘discovered the problem’ – which again, in my mind I thought that was discovered in September 2012 … obviously notπŸ€·πŸ»β€β™€οΈπŸ˜‚. But then again, this may have been an additional problem?πŸ€”

So they found that by inserting a balloon inside of me… they could open up the top stomach valve which was almost so tightly shut .. so much so food was struggling to go down.

I remember being wheeled back to my ward after being in recovery and seeing my surgeon and his team standing outside my door… all smiling at me and my dad. It was weird … but a good weird….

When I find out why they were standing outside and what they had discovered – it felt like a massive relief! I was so happy that there was a reason as to why I had been struggling the way I had been – it wasn’t my fault! There was a problem there! And this problem could now possibly be solved!

Oh and the ‘Gangnam style’ situation …. I can still, to this day see my surgeon and his team dancing around the operating table to it…

I remember this PH Test… I had that tube down one nostril and my feeding tube down the other nostril … it was like my nose was a bloody charging socket! 🀣

I can’t actually remember the results of this test … I just remember how uncomfortable it felt..

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What’s going on? (6 years cont..)

It’s kind of scary to think that all of this was going on around this time 6 years ago. Anyway, onto the rest of my story…

A lot of the time spent down in X-Ray was a bit of a blur if I’m honest. I’m told we were down in X-Ray for quite a long time. I remember the radiographer on the phone to someone whilst walking in and out the room. (The person on the other end of the phone, I found out later, was actually my consultant – he was directing the radiographer on what pictures he wanted taken at different angles). From what I’m told everyone was a bit shocked at what they were seeing.

The images appearing on the screen seemed to show that my stomach, liver and basically everything else in that area was in the wrong place. The main organs in the wrong place were; my stomach and my liver. My stomach was positioned vertically up my left side of my body and my liver was where my stomach should have been. I reckon I was in the X-Ray department for at least an hour or so. The radiographer was getting as many images as was instructed (by my consultant) and because we were in there so long, and the radiographer was taking a lot of images – a warning light apparently started flashing. This was to say that we were getting near, or had gone over, the limit of radiation that a person should have in one go. In total I had 72 images taken in that room. That number has always stuck with me for some reason. I remember seeing the number on the screen. Another thing that had to be done during the taking of images was moving my NG tube, which I still had. And by this, I don’t mean taking it out and putting a new one in a different nostril or anything, just moving it a bit from the outside so the inside – which was in my stomach – could be seen on the computer/image. I can’t remember exactly why. Maybe because it was getting in the way of important areas in the image?

So anyway, once I had spent my time down at the X-Ray Department Me, my dad, my nurse and the student nurse went back up to the ward. That evening (I think), my soon-to-be new consultant came to see me. He explained what he saw in the scans. Where the stomach and liver was, and various other organs. But the stomach and liver was the main concern. He mentioned an operation – which was suggested previously a couple of months back, but that was only a maybe at that point. Now, it was definite. I needed this operation. And this operation that was needed? It was quite a major procedure. At the time, it didn’t seem that major – I think I was just numb from everything that was going on. I smiled and carried on as per ‘normal’ – genuinely my usual reaction to something that doesn’t quite go right. I think also, because I was quite young, I didn’t quite understand the full meaning of it all. They had to move my organs aroundΒ – it still doesn’t seem that big of a deal to me if I’m honest. My Dad probably had it explained in a slightly more detailed way than was told to me. Obviously, he didn’t react to it and had the same attitude as me – although that might have been a cover to protect me. We were told that they couldn’t do anything straight away as I was still quite weak and needed to be ‘built-up’ with mainly tube feeds.

The following few days involved; speaking to my consultant and his team, having a procedure done (very minor op to insert a picc line for tpn/drip feeding), resting and the normal obs and blood tests.

Here are some screenshots of a few Facebook posts I uploaded at the time. Excuse my grammar and spelling back then. Some of it is a bit cringy if I’m honest πŸ˜‚πŸ˜‚. But I’m showing you because, well, they’re quite light hearted and it just shows the sense of humour I had at this time.

^^^^^

Yes, I craved foods in hospital, mainly cheese though….πŸ˜‚^^^^^^

(This was funny, everyone, including the staff were a bit puzzled as to who this ‘Jamie Rickers was. πŸ˜‚. That was until he actually came to the ward. We knew who he was then!πŸ˜πŸ˜‚) By the way – I can’t find the photo unfortunately)