Hello again.
Long time no see hehe.
Today I’m having a bit of a… Well a roller-coaster of a day I guess.
It’s been the same as most days. I had work (from home still) and just the normal routine that I have had for the last few months.
Although I did have one slight difference. I had a phone consultation with my dietician.
I have appointments with her every 6 or so months. Just to see how I’m getting on with my pump and how my weight is doing.
Fortunately my weight is stable (I weighed myself on our scales beforehand). I’m still struggling to put on the weight but with what I’ve been through and my natural build that’s kinda normal (although also slightly annoying haha)
As well as my weight, a couple of other things were mentioned.
For a while now I’ve been getting what seems like on and off infections on the site around my tube. It gets inflamed, sore, and sometimes extremely painful. I’ve been to the doctors numerous times about it and I’ve constantly had antibiotics for it. They do help… But only for a short period of time.
My dietician is getting concerned about how often I’ve been getting these so called ‘infections’ and if they are actually infections.
There is a possibility that the redness and soreness is just because the tube is rubbing against my skin and causing friction. In which case, she’s offered me to try a new tube – which she has sent me and I am to try next week (I am due a button/tube change next week – I do it myself nowadays)
If this tube does work, and stops the burning, redness and soreness- then brilliant! If not. Then she said it could be a problem/infection inside my stomach. In which case she recommends I talk to my consultant about having a camera down into my stomach to have a look (ocg – which I’ve had numerous times in the past!)
I am hoping it doesn’t come to the latter in a way. Obviously if it does, I wouldn’t refuse the test – I’d rather know what’s going on and find a way to resolve it. However I can feel the nerves I had years back when I use to have those tests, deep within.
I like to think I’ve moved on from that stage in my life so when something like this happens and I need to have tests or something, I dred it.
Why can’t I just be left alone to live my life?
Anyway. I’m trying to tell myself it probably won’t come to that. I just gotta keep going, keep smiling and carry on.
Another issue I have at the moment is that I have a stitch that has pierced its way through my skin. Basically I have still got a few stitches left inside of me from operations I had 7 years ago. One… Or since recently… 2 stitches decide to pop up and out of my skin to say hello.
It doesn’t hurt or anything. They’re just annoying and keep getting caught on clothing 😂.
I need to have them removed. I have coped with them for a while but I swear they’re sticking out more and more, and like I said. A second one has recently appeared.
I don’t know what’s happening but it has happened in the past. Previously, my consultant has just pulled it a little and cut it down so it doesnt pop out again (or in my case… A small while)
I need to have this done again. Either by my gp or consultant. So after a chat with my dietician, that is something I will be arranging.
So yeah. A few little hiccups but I’m still going and trying the best I can. I am feeling a bit low today because of the small knock backs and just want to cry, be left alone but also hug people who will let me hug them😂 (I don’t know what I quite want haha)
I’m struggling but at least I know I will get through. I always do.
K x
Katie's Journey 