As I’m writing this I am in agony.
I’ve had a couple of good days but I’ve also found something.
I’ve had this sharp pain in my back that appears after eating.
It’s only been happening within the last few weeks. Thinking about it, it’s only been happening since my new tube has *possibly* moved.
I’ve been having my excessive leakage and discomfort come back. I had a week following the procedure, of no leakage at all – with which I thought great!
However after a week of comfort, I started to have leaking again. And it progressively got worse – to the point where its now where it was before I got this new tube.
It feels like a never ending cycle! Whatever I do, nothing works.
I figure it may be because my new tube has moved position – from my bowel back to the stomach, because I had a chat with my consultant last week and she mentioned that it seems funny how I had 1 week of no leakage then suddenly it all came back.
So it’s being arranged for me to possibly go back up to King’s for an x-ray to see where it is. Then possibly a repeat of the same procedure to get it back into the right place.
It’s so frustrating!
And ever since its moved, I’ve noticed everytime I eat, I get a sharp pain in the back. It only lasts about 30mins to an hour, but it has been very painful.
It is hard to say if it is the tube though as I’m okay when I wake up in the morning, after having my feed.
It’s just when I eat.
Might be trapped wind..😂… as my stomach isn’t in the normal place so I could get trapped wind in places where you wouldn’t normally.
But I’m awaiting a call from a doctor and am going to mention it then.
Who knows what this new pain could be.. I just want it to go.
If its not one thing, it’s another.
It honestly feels like its never-ending when it comes to my condition.
I’m so tired mentally and physically. It feels appropriate to wear this jumper from Lolli Clothing at the moment 😂
Katie's Journey 